Showing posts with label support groups. Show all posts
Showing posts with label support groups. Show all posts

Walking the Path of Sibling Loss

To the outside world we all grow old. But not to brothers and sisters. We know each other as we always were. We know each other’s hearts. We share private family jokes. We remember family feuds and secrets, family griefs and joys. We live outside the touch of time.  ~ Clara Ortega

A reader writes: My older brother and only sibling passed away suddenly at the age of 30. This is selfish, but what I hated most during the funeral and days to follow were people telling me to:

  • Take care of my parents.
  • Be there for my parents.
  • Watch out for my parents.

It was weird; it was like my grief did not/does not exist. I hate the fact that sibling grief is something that is usually not acknowledged. I mean you can usually find more information on parents losing children or children losing parents or even when you lose a pet -- but hardly any information on the feelings of siblings losing siblings.

In Grief: Comparing Pet Loss to Loss of a Person

I question whether experiences of such severe loss can be quantified and compared.  Loss is loss, whatever the circumstances.  All losses are bad, only bad in different ways.  No two losses are ever the same.  Each loss stands on its own and inflicts a unique kind of pain.  What makes each loss so catastrophic is its devastating, cumulative, and irreversible nature . . . So whose loss is worse, hers or mine?  It is impossible to give an answer.  Both are bad, but bad in different ways.  ~ Jerry Sittser in A Grace Disguised: How the Soul Grows through Loss

Understanding and Managing Grief, December 10 - December 16, 2023

Best selections from Grief Healing's X feed this week:

Grief is a process that we must engage with in order to heal and ultimately experience joy. Grief can be more severe or prevalent during the holidays; it's important to make space for your grief. Everyone grieves; no one escapes this universal experience of being human. What Anderson Cooper Gets So Right About Grief « P ychology Today

Finding Support in A Grief Group

Exploring the unknown requires tolerating uncertainty.  ~ Brian Greene

A reader writes: I am going to go to my first grief group meeting tomorrow afternoon. I have to admit, I have never been to any kind of support group meeting like this before, and I'm feeing pretty uncertain about it. Any thoughts you'd be willing to share with me?

My response: I applaud your decision to participate in a support group. It takes great courage to acknowledge your need for the support of others, and I respect and admire you for taking this important step in your own healing. Remember too that you are not alone in feeling as you do ~ I'm sure you'll meet others in your group who are just as reluctant to be there as you are. 

Supporting A Parent in Grief

[Reviewed and updated December 22, 2024]

The loneliest moment in someone’s life is when they are watching their whole world fall apart, and all they can do is stare blankly. ~ F. Scott Fitzgerald

A reader writes - My mom died six months ago after a long battle with COPD (Chronic Obstructive Pulmonary Disease). Knowing that she had a terminal illness and that she was in the end stages of this disease, our family agreed to take her off life supports. I thought I had this all figured out, her dying. I thought I was prepared for that day. Boy what a shock to myself. This has been the worst thing that I have been through. I miss my mom so much that I feel physically ill. I don't think you ever really get over it, just need to figure out how to live with it. Now I am very worried about my dad. He has shut down. He drinks too much. He sits on the couch watching TV. He says he has no ambition to do anything. He misses her badly and is very lonely. My adult children do not visit him because they don't know how to handle him. So I call everyday and visit, have him over two or three times a week for supper. I don't know how to help him start living again.

In Grief: Finding Support in A Group

Find the latest version of this post here:
Finding Support in A Grief Group

A reader writes: I am going to go to my first grief group meeting tomorrow afternoon. I have to admit, I have never been to any kind of support group meeting like this before, and I'm feeing pretty uncertain about it. Any thoughts you'd be willing to share with me?

My response: I applaud your decision to participate in a support group. It takes great courage to acknowledge your need for the support of others, and I respect and admire you for taking this important step in your own healing. Remember too that you are not alone in feeling as you do ~ I'm sure you'll meet others in your group who are just as reluctant to be there as you are. 

Humans by nature are social beings, and mourning is an interpersonal process. When death touches someone we love, whether that is a person or a cherished animal companion, we naturally feel a need to be with others who understand because their experiences are similar to our own, and we feel a need to tell our stories of loss

Unfortunately, because we still live in a death-denying culture, most of us have grown up with little if any exposure to death and dying. Until hospice programs offered an alternative, most people died in hospitals and nursing homes, and their remains were whisked off to funeral homes ~ it all took place somewhere other than at home. We've had little experience and training in how to manage grief. We don't live in tribes, villages or small towns anymore (where everyone knew everyone else and we knew what was going on in one another's lives), and unless we live near extended family, we don't have people around us who know enough about us to be with us in our losses. When someone close to us dies, the people we might encounter every day (at work, at the cleaners, the grocery store, the post office, etc.) know little or nothing about us and our losses, or what the deceased pet or person meant to us ~ so they don't know what we need or how to respond to us. And during the year-long COVID-19 pandemic, we may have been isolated and prevented from being with a loved one when they died, or unable to mourn a death in person with supportive family and friends. 

Voices of Experience: Surviving Complicated Grief

Sydell with her husband Rex, 2013
By Sydell Weiner, PhD

The risk of love is loss, and the price of loss is grief ~ but the pain of grief is only a shadow when compared with the pain of never risking love.  ~ Hillary Stanton Zunin

Even though she is a licensed Marriage and Family Therapist, Sydell Weiner writes that when her husband died nearly 3 years ago, "I fell apart. I was fortunate to find a 'Loss of Spouse' group at the Gathering Place, a service provided through Trinity Hospice at Providence Little Company of Mary. No sooner had that group ended, that a workshop called 'The Write Way' began. It provided guidance on how to use writing as a way of healing and working through grief. I have a blog on my website which had one or two counseling articles, but they were soon replaced by a series of blog posts that allowed me to express feelings too raw to talk about." The following post is taken from that series, and is reprinted here with Sydell's permission.

Coping with the Holidays: Suggested Resources 2016

[Most recent update: Tuesday, January 10, 2017]

It's funny to think that Christmas — a time known for its joyful togetherness — can be the loneliest time of the year for some. ~ Giovanna Fletcher

Once again we find ourselves heading into the holiday season, which for many of us can be a stressful and challenging time, especially if we're anticipating or coping with the loss of a loved one. Fortunately the Internet offers access to a variety of useful and reliable resources that can help us find our way through these difficult days. In addition, many community hospices and mortuaries offer programs and workshops to guide and support individuals and families to identify and learn how to manage the mixed and painful emotions that can surface at this time.

As I’ve done in years past, I’ll be looking online for articles, webinars and other reliable resources to recommend to my readers, and each day throughout the holiday season I’ll be posting links to them on this page. Since I am building upon this list on a daily basis, I invite you to check back often to see what’s been added.

Coping With The Holidays: Suggested Resources 2015

Source
[Most recent update: Friday, December 25, 2015]

I watch the happiness of others, quietly resenting the healthy intact families finding joy at their holiday table. A tinge of jealousy sneaks its way to the surface. The holidays present another level of grief.  ~ Julie Siri

In my daily travels around the Internet, I am always on the lookout for helpful articles and reliable resources that I can recommend and share with my readers. This is especially important during the holiday season, which for many mourners and caregivers can be a difficult and challenging time.

Understanding and Managing Grief, March 22 - March 28, 2015

Best selections from Grief Healing's Twitter stream this week:

Grief Support Groups: Positives and Pitfalls, http://j.mp/1ydv7qB « What's Your Grief?

What I Wish More People Understood About Losing A Child, http://j.mp/1xifKlI « MindBodyGreen

So beautiful! Bearing Witness, http://j.mp/1BLWFnh « The New York Times Opinionator

Loss of a Dream: When A Baby Isn't Perfect


[Reviewed and updated March 11, 2020]

Hope is not a dream but a way of making dreams become reality. ~ James Womack


A reader writes: Apparently there is a syndrome in which a year or two after a parent learns that their baby/child has a severe disability, that parent, often the mother, has a sort of crisis and behaves out of character. This has recently happened to my wife. Over a year ago, our daughter (then 8 months) was diagnosed as being 98% deaf. Can you help identify the syndrome's name, if indeed it has one? 

Coping with the Holidays: Suggested Resources 2014

Source
[Most recent update: Sunday, December 28, 2014]

Isn't there anyone who knows what Christmas is all about?  ~ Charlie Brown

A reader writes: I'm in a very bad place. Numbness is still huge. But pain is in my heart too. The holidays are weighing on my heart so heavily. It's very hard to get up every day. And very hard to get through very dark long lonely nights. Honestly the only reason I am functioning for the holidays is for my two grandsons. They are the reason I still breathe in and out each day. I look at their faces and they are the reason to keep trying. It's so hard though to put on a smile. It's so hard to breathe in and out. Do you have any special tips on coping with the holiday season?

Understanding and Managing Grief, October 19 - October 25, 2014

Best selections from Grief Healing's Twitter stream this week:

Insightful: Grieving Without God, http://j.mp/ZRbFFo « Alive in Memory

The Grief Journey-What To Pack, http://j.mp/1zpNSww « The Grief Toolbox

Child’s Eye View of Death: The Power of Picture Books to Explain, http://j.mp/1wa3Bxj « The Guardian

New Year Resolutions in Caregiving and Bereavement

Source
[Reviewed and updated December 31, 2022]

'That which does not kill me makes me stronger' is not a law of the universe. What it can be, if we so choose, is a resolution.
~ Julian Baggini

Resolutions for Caregivers
In keeping with her goal “to offer encouragement, empathy, education and effective strategies to enrich your life as a caregiver,” registered nurse and caregiver Shelley Webb of Meaningful Midlife suggests Ten Caregiving Goals for The New Year. I encourage those of you in the caregiving role to visit Shelley’s helpful Web site, and take her practical suggestions to heart.

In the same spirit, I offer the following suggestions for those who are coping with the loss of a loved one:

Resolutions for the Bereaved

Coping with the Holidays: Suggested Resources 2013

Source
A lovely thing about Christmas is that it's compulsory, like a thunderstorm, and we all go through it together.  ~ Garrison Keillor

A reader writes: I just recently lost my mother after her two-year battle with breast cancer. I feel like a piece of me died right along with her. I was always close to my mother, and she was so close with my children. I don't know how to explain the hurt I feel inside. The weather is starting to change here by getting colder, which always brings the holidays - which brings me to the question: How do we deal with the empty chair at the holidays?

Understanding and Managing Grief, September 15 - September 21, 2013

Best selections from Grief Healing's Twitter stream this week:

Inspiring! Grief: Creating Meaning for Your New Life, Your New Self http://j.mp/1eypIof « Stop Thief: Don't Steal My Grief

Friday Favorites: Grief Articles from This Week, http://j.mp/18GrrFx « What's Your Grief?

Weathering the fog after a suicide, http://j.mp/1aZbKLi « Hello Grief

On the value of Grief support: After the Last Bereavement Gathering, http://j.mp/1fhMHmi « Elaine Mansfield

Parents' anguish turns into mission http://j.mp/15asrRB « The Detroit News Lifestyle

Understanding and Managing Grief, August 4 - August 10, 2013

Best selections from Grief Healing's Twitter stream this week:

Nationwide Grief Support Groups, Resources and Information, http://j.mp/14Cqrl8 « About.com Death & Dying

Excellent Primer on Grief Intelligence, http://j.mp/19gOmIA « Ashley Davis Bush, LCSW

What Hope Is -- and How You Hang On to It, http://j.mp/1987gh2 « Stunned By Grief

Here are 7 tips for helping a loved one grieve, with help from experts, http://ow.ly/nJbT5 « US News & World Report Health

7 tips for cooking for the bereaved, http://j.mp/187pY7w « Cooker and A Looker

Caregiving and Hospice, June 16 - June 22, 2013

Best selections from Grief Healing's Twitter stream this week:

Gifts of the Heart: A lovely documentary piece (15 minutes) on the benefits of hospice volunteering  « YouTube

A Search for Harmony,  « New York Times

New End-of-Life Measure Quietly Sweeps Nation: States Embrace POLSTs http://bit.ly/15mM96j « Stateline (Daily News Service of The Pew Charitable Trusts)

Amen! Palliative care has become the last bastion of health care sanity, http://j.mp/10AC2yI « Kevin MD

A Palliative Nurse Practitioner's lovely story: Dying a Hero's Death, http://j.mp/1awOe5r « Kevin MD

Understanding and Managing Grief, June 16 - June 22, 2013

Best selections from Grief Healing's Twitter stream this week:

Heartrending: Tony Soprano Died, and You Did Too,  « Widow's Voice

Touching tribute: The Colbert Report: Remembering Lorna Colbert, http://j.mp/1c4GtSe « Hulu

Moving: They Loved Him Because He Was There,  « Maria Shriver

On taking a break from news trauma: Closing My Screen Door,  « Maria Shriver

Wow. What It Feels Like To Be Photographed In A Moment Of Grief,  « NPR

Caregiving and Hospice, June 2 - June 8, 2013

Best selections from Grief Healing's Twitter stream this week:

Cases: What Do I Say To My Kids? http://j.mp/14J79E9 « Pallimed: A Hospice and Palliative Medicine Blog

8 Great Tips For Long-Distance Caregiving, http://fb.me/1Lk09NFcz « Huffington Post

Important! The Balancing Act: Retirement Savings, College Funding and Caregiving, http://ow.ly/lONha « A Place for Mom

Hospice isn't for "when nothing can be done;" it IS the something that can be done, http://bit.ly/11wKHQB « The Bowie Blade-News

LIVE Without Pain http://j.mp/GGtiJY « Caring Connections - NHPCO