Showing posts with label alzheimers. Show all posts
Showing posts with label alzheimers. Show all posts

In Grief and Caregiving: Finding Inspiration to Go On

Being deeply loved by someone gives you strength, while loving someone deeply gives you courage.     
~ Lao Tzu

A reader writes: I lost my dad four months ago. It has been a very difficult time for me. We were very close and our relationship grew even stronger 5 years ago when my mom underwent bypass surgery and suffered complications. As a result she developed what they call infarct dementia. Since my dad (who wasn't in the best of health) could not possibly care for her on his own, my wonderful husband  decided it was time for them to move in with us. I helped my dad nurse my mom back to a state where she could walk again and be in the world again. Although her recovery was miraculous in itself she was never again to be the same mentally. But that was o.k. we were just happy to have her back again. And for me it was a true lesson of how the power of love can get  you through your most difficult times. It certainly restored my faith. It was something that father and daughter did together as a true act of love.

The point of all of this is that my dad's passing left me feeling alone and hopeless. I silently asked myself how can I possibly care for my mom by myself?

Caregiving & Grief, August 16 - August 22, 2020

Best selections from Grief Healing's Twitter stream this week:

Hospice of the Valley has been awarded a federal grant to serve more families living with Alzheimer’s disease and other dementias. Hospice of the Valley earns prestigious Alzheimer’s grant « AZ Big Media 

I didn’t know that grief changes you on a soul level, the way falling in love changes you, the way becoming a parent changes you. This Is Why I Write About My Grief « Yahoo!Life

Caregiving and Grief in Alzheimer's and Dementia: Suggested Resources

[Reviewed and updated June 10, 2026]

Grief is the constant yet hidden companion of Alzheimer's disease and other related dementias.  ~ Kenneth J. Doka

A hospice colleague writes: We are preparing a program on issues of caring for those with dementia (and their caregivers) who are bereaved, as well as caring for the bereaved whose loved ones had dementia. If you find any relevant material on these issues, I would appreciate anything you can share.

Understanding and Managing Grief, November 4 - November 10, 2018

Best selections from Grief Healing's Twitter stream this week:

Why do we give dogs a better death than we give ourselves? http://j.mp/2ATheZJ « Aeon Essays

The Existential Crisis of Grief, http://j.mp/2JM38vS « Grief Compass

Finding H O P E at Camp Widow, http://j.mp/2APf50R « Soaring Spirits International

Caregiving and Hospice, June 25 - July 1, 2017

Best selections from Grief Healing's Twitter stream this week:

Hospice Care: When is it Time? http://bit.ly/2kdbwu8 « EGAN Home Health and Hospice

Hospice Care about Re-Focusing Priorities, Not Giving Up - Alzheimer's, http://j.mp/2uikS9g « Health Central

From above: Geriatric social workers mean the world to children of aging parents, http://j.mp/2u8CG6P « Chicago Tribune

Caregiving and Hospice, May 28 - June 3, 2017

Best selections from Grief Healing's Twitter stream this week:

I Will Help You: Palliative Care Support Before Hospice, http://bit.ly/2qyUUwU « Elaine Mansfield

New resources from Alzheimer's Association for primary care providers, http://bit.ly/2sbe3p7 « ehospice USA

Your feedback is welcome! Please feel free to leave a comment or a question, or share a tip, a related article or a resource of your own in the Comments section below. If you’d like Grief Healing Blog updates delivered right to your inbox, you’re cordially invited to subscribe to our weekly Grief Healing Newsletter. Sign up here.

Caregiving and Hospice, May 14 - May 20, 2017

Best selections from Grief Healing's Twitter stream this week:

We're Bad at Death. Can We Talk? http://nyti.ms/2rEVqJV « The New York Times

Cancer Patients Might Be More Optimistic About Prognosis Than Their Doctors, http://bit.ly/2qGtp5h « Seven Ponds

Rebecca Sudore on Advance Care Planning: The Prepare Trial, http://bit.ly/2rzfDRg « GeriPal

Coping with the Holidays: Suggested Resources 2016

[Most recent update: Tuesday, January 10, 2017]

It's funny to think that Christmas — a time known for its joyful togetherness — can be the loneliest time of the year for some. ~ Giovanna Fletcher

Once again we find ourselves heading into the holiday season, which for many of us can be a stressful and challenging time, especially if we're anticipating or coping with the loss of a loved one. Fortunately the Internet offers access to a variety of useful and reliable resources that can help us find our way through these difficult days. In addition, many community hospices and mortuaries offer programs and workshops to guide and support individuals and families to identify and learn how to manage the mixed and painful emotions that can surface at this time.

As I’ve done in years past, I’ll be looking online for articles, webinars and other reliable resources to recommend to my readers, and each day throughout the holiday season I’ll be posting links to them on this page. Since I am building upon this list on a daily basis, I invite you to check back often to see what’s been added.

Caregiving and Hospice, August 21 - August 27, 2016

Best selections from Grief Healing's Twitter stream this week:

More Than Medication: Hospice Care, http://j.mp/2bkZsPh « KJZZ

A physician tells a health insurance CEO what she really thinks, http://j.mp/2brUZfm « Kevin MD

Last 25 Articles on the Alzheimer's Reading Room, http://j.mp/2bzU7aj « Alzheimer's Reading Room

Caregiving and Hospice, April 3 - April 9, 2016

Best selections from Grief Healing's Twitter stream this week:

How a Service Dog Saved My Life, http://j.mp/1q4PwjY « HuffPost Accessibility

In Facing Death: We Are All So Different, http://j.mp/1VteQMq « Grief Watch

21 Communication Tips from Persons Living with Alzheimer's and dementia, http://j.mp/1S0CxGn « Alzheimer's Reading Room

Your feedback is welcome! Please feel free to leave a comment or a question, or share a tip, a related article or a resource of your own in the Comments section below.
If you’d like Grief Healing Blog updates delivered right to your inbox, you’re cordially invited to subscribe to our weekly Grief Healing Newsletter. Sign up here.

Caregiving and Hospice, March 27 - April 2, 2016

Best selections from Grief Healing's Twitter stream this week:

ZDoggMD: I was wrong about vaccines, http://j.mp/1ZTJ5wQ « Kevin MD

New Music App for Alzheimer's Patients, Caregivers, and Family, http://j.mp/1X1mwV9 « Alzheimer's Reading Room

Who’s In Your Care Crew? http://j.mp/1M2UW9y « The Unprepared Caregiver

Caregiving and Hospice, March 20 - March 26, 2016

Best selections from Grief Healing's Twitter stream this week:

Dementia and Alzheimer's Care, The Black Hole in Our Society, http://j.mp/1SaWsTq « FamilyAffaires.com

The Eloquence of Silence, http://j.mp/1pKAa4w « The Unprepared Caregiver

National palliative care strategy needed, http://j.mp/1RxiTI6 « North Bay Nugget

Caregiving and Hospice, February 7 - February 13, 2016

Best selections from Grief Healing's Twitter stream this week: 

In Palliative Care, Comfort Is the Top Priority, http://j.mp/1LlrXI2 « The New York Times

Alzheimer’s and Hospice Approval Denied, http://j.mp/1WgynxX « Hospice Times

Living with cancer: don't call us survivors, http://j.mp/1Q7zO3o « Stan Goldberg, PhD

Caregiving and Hospice, October 4 - October 10, 2015

Best selections from Grief Healing's Twitter stream this week:

California assisted suicide bill signed into law, what next? http://j.mp/1OVv0fv « GeriPal

Free online course to help talk about end of life care, http://j.mp/1jb0xxp « ehospice

Compassionate Companions: Understanding the Final Moments of Life, http://j.mp/1jb0nGg « Seven Ponds Blog

Caregiving in Serious Illness: Suggested Resources


[Reviewed and updated June 16, 2026]

Nearly 44 million unpaid caregivers form the backbone of the US chronic and long-term care system. These hard working family members provide care to injured veterans, aging adults, children with special needs, and individuals with chronic medical needs. Currently, 72% of caregivers take care of someone 50 or older. As the Baby Boomer generation ages, the number of people who need care will continue to swell.  ~ National Alliance for Caregiving

A reader writes: Can you lend your expertise and provide some resources that will aid in delivering hospice and palliative care to individuals and families who suffer with and alongside serious illness?

My response: Along with the dozens of articles and sites you'll find on my Hospice and Caregiving Pinterest board, I've assembled here a list of websites and resources I hope you will find useful. As always, I invite our readers to add their own suggestions in the Comments section below:

Caregiving and Hospice, August 2 - August 8, 2015

Best selections from Grief Healing's Twitter stream this week:

Alzheimer’s Caregiving – There’s An App For That! http://j.mp/1OR2AQl « Alzheimer's Association

Alzheimer's, Dementia Patients and Hospice, http://buff.ly/1g22kCM « Barbara Karnes, RN

Why doctors overtreat patients. And how to fix it. http://j.mp/1KQv5Nf « Kevin MD

Caregiving and Hospice, July 26 - August 1, 2015

Best selections from Grief Healing's Twitter stream this week:

Everything you ever wanted to know about death but were too afraid to ask, http://j.mp/1UeMFyQ « The Age, New South Wales

Powerful: Reflections of an Alzheimer's Spouse: Stress and Grief, http://j.mp/1DPqdTw « HuffPost Healthy Living

Details and Lyrics: Ain't The Way To Die, http://j.mp/1MtTASL « ZDoggMD

Caregiving and Hospice, June 21 - June 27, 2015

Best selections from Grief Healing's Twitter stream this week:

5 Great Ways to Spend Time with Parents with Dementia or Alzheimer's, http://j.mp/1BT3ris « The Caregiver Partnership

Death Walking - The Sacred Role of Accompanying the Dying, http://j.mp/1BPx7g8 « Ezine Articles

Living With Cancer: Being Mortal, http://j.mp/1KdjI2B « The New York Times

Caregiving and Hospice, May 10 - May 16, 2015

Best selections from Grief Healing's Twitter stream this week:

Assisted-suicide debate puts palliative, hospice care in spotlight, http://j.mp/1ENzUkK « Modern Healthcare

Interview: How Do Caregivers Enjoy Time with Alzheimer's Patients? http://j.mp/1HjItYz « Seven Ponds Blog

Overkill: America’s Epidemic of Unnecessary Care - Atul Gawande, http://j.mp/1JJeae4 « The New Yorker

Caregiving and Hospice, May 3 - May 9, 2015

Best selections from Grief Healing's Twitter stream this week:

Thickened Liquid Challenge on Making Sense of Alzheimer's, http://j.mp/1IrBGxB « GeriPal

Heartwarmer! Watchdog Cat Looks After Hospice Patient, http://j.mp/1Eo5xBj « WHOtv.com

The Need for Stability Part II: Its Role in Chronic and Progressive Illnesses, http://j.mp/1zBbUoO
« Stan Goldberg, PhD