Showing posts with label terminal illness. Show all posts
Showing posts with label terminal illness. Show all posts

Keeping the Secret of a Terminal Prognosis: Finding the Courage to Tell Those You Love

If you want to keep a secret, you must also hide it from yourself.  ~ George Orwell in 1984

A reader writes: I am married and the mother of three children. I have been told by my doctors that I have a rare and terminal illness. My husband and children love me and need me, and they do not know that I am dying because I cannot tell them.

How can I tell the ones who count on me that I won’t be here for them? How can I tell them that I brought them into the world with love and tears, and now I’m leaving?

My husband and children don’t know. I won’t let them know.

Resources for Supporting Others Through Anticipatory Grief

 Saying that I was experiencing “anticipatory grief” would not have come close to capturing all the nuances and struggles, unique for me, as it is for everyone. ~ Donna S. Davenport

A colleague writes: I have a request to consult tomorrow with counseling staff at a high school regarding a staff member just diagnosed with a stage four brain tumor. Looking through your rich web site I'm saying to myself, "Articles, and books and messages, oh, my." Can you help me go to materials on anticipatory grieving, or feeling our own mortality/vulnerability, or helping someone cope with a terminal illness?? You may be able to help me sort through so I can go straight to the meat this busy day before I must show up ready to help! Many thanks if you can help at this last moment.

Anticipatory Grief: Staying Present When Loss Is Inevitable

In order to get from what was to what will be, you have to go through what is.  ~ Unknown

A reader writes: My husband has advanced-stage lung cancer, and I have to face the inevitable that he will die soon. It’s been 8 months; we’ve been married for 20 years. I’m sure that it’s normal, but the thoughts that are running through my head are driving me insane. I keep envisioning myself starting relationships with other men. I feel guilty like I’ve already moved on with my life. It’s survival instinct too, because I can’t support my kids on my own and I’m trying to figure out what to do with the rest of my life. I love my husband dearly. I want to be focused on the present. How do I do that?

Should We Tell Our Dad That He's Dying?

Facts do not cease to exist because they are ignored.  ~ Aldous Huxley

A reader writes: We know my dad is dying of cancer but apparently he still isn't aware of the truth. I don't find this to be right. I believe he should be told so if he has things he would like to say or do he can say or do them. I don't find that my stepmother is being fair with him. She has been a tough one to deal with during all this. She doesn't even tell us girls what is going on with our father. I was angry with her for this, but I have accepted that this is just her way for whatever her reasons. My stepbrother has called to tell me that hospice is dropping more and more hints, the signs of his end are more obvious, and it is really only a matter of time now. My sister and I have decided to visit him for the last time and say our goodbyes. Is there something you can share with me on coping with this being the last time I will probably see him alive? Should I say something about him not going to pull through this one? I am scared to face this now. Any words from you will be appreciated.

In Grief: Staying Present in The Face of Inevitable Loss

Find the latest version of this post here:

A reader writes: My husband has advanced-stage lung cancer, and I have to face the inevitable that he will die soon. It’s been 8 months; we’ve been married for 20 years. I’m sure that it’s normal, but the thoughts that are running through my head are driving me insane. I keep envisioning myself starting relationships with other men. I feel guilty like I’ve already moved on with my life. It’s survival instinct too, because I can’t support my kids on my own and I’m trying to figure out what to do with the rest of my life. I love my husband dearly. I want to be focused on the present. How do I do that?  Read on here >>>

In Grief: Conflicting Feelings in the Wake of Loss

[Reviewed and updated February 25, 2024]

The mental mist of ambiguity and the fog of ambivalence hamper human existence.  ~ Kilroy J. Oldster

A reader writes: I am beside myself. I want to be OK with this because my wife had lung cancer and she isn't sick anymore. She no longer requires the numerous medications that were for everything from pain to nausea. I should be glad for her but I miss her. I thought I had said everything I needed to say but now I feel as though I have more to say.

In Grief: Can This Relationship Survive?

[Reviewed and updated January 25, 2025]

Love does not claim possession, but gives freedom.  ~ Rabindranath Tagore

A reader writes: I am not sure if you can help me or not but I want to let you try. I was in a very good relationship with a person until she received news that her mother was terminal. In a matter of a weekend she completely turned on me and wanted me out of her life. This is after 2 years of an almost perfect and very loving relationship. I was told that this is how some people grieve is to take the person closest to them and drive them away. It has left me completely devastated at this point. Do you know anything about this type of grieving and what I can expect from the future? She will not go to counceling since in her eyes nothing is wrong. I won't go into a lot of details unless you feel you can possibly understand why this happened and tell me a little more about what to expect. Thank you for your time.

Keeping the Secret of A Terminal Prognosis: Afterword

[Reviewed and updated June 19, 2026]

Sharing tales of those we've lost is how we keep from really losing them.
  ~ Mitch Albom

A reader writes: As the daughter of the woman whose letter appears in your post Keeping the Secret of A Terminal Prognosis: Finding the Courage to Tell Those You Love, I wanted you to know that just four months after she wrote those words to you, my beautiful mother died in her sleep of heart failure. My father woke up in the morning and found her gone.

She left us all letters, and in mine she left a link to your online forum, along with her log in and password. She wanted us to read all that she had written.

I want to let you and your readers know what she was like.

Caregiving and Hospice, March 24 - March 30, 2019

Best selections from Grief Healing's Twitter stream this week:

Jacqueline Marcell - Elderly Patient Care, http://j.mp/2Ov9cLK « Throomers

I Hear You, But I Don't Understand, http://j.mp/2OqXEsN « BK Books

Alex Trebek, Cancer, and the Language of Life-Limiting Illness, http://j.mp/2OoyzyJ « Seven Ponds Blog

Your feedback is welcome! Please feel free to leave a comment or a question, or share a tip, a related article or a resource of your own in the Comments section below. If you’d like Grief Healing Blog updates delivered right to your inbox, you’re cordially invited to subscribe to our weekly Grief Healing Newsletter. Sign up here. 

Caregiving and Hospice, August 27 - September 2, 2017

Best selections from Grief Healing's Twitter stream this week:

Palliative Care Can Support You At Diagnosis, http://j.mp/2vQIa6m « Get Palliative Care

Stop telling people they're fighters who will 'beat' terminal illness, http://j.mp/2wD8LIL « USA Today

Your feedback is welcome! Please feel free to leave a comment or a question, or share a tip, a related article or a resource of your own in the Comments section below. If you’d like Grief Healing Blog updates delivered right to your inbox, you’re cordially invited to subscribe to our weekly Grief Healing Newsletter. Sign up here.

Caregiving and Hospice, May 21 - May 27, 2017

Best selections from Grief Healing's Twitter stream this week:

Don't wait: Now's the time to discuss end-of-life care https://usat.ly/2r71Lyq « USA Today

Hospice care doesn't have to start at the end of life, http://bit.ly/2qpJNq1 « WRAL.com

What It Takes To Be A Hospice Nurse, http://bit.ly/2qhHLfm « Barbara Karnes, RN

Caregiving and Hospice, April 23 - April 29, 2017

Best selections from Grief Healing's Twitter stream this week:

Widespread Hype Gives False Hope To Many Cancer Patients, http://bit.ly/2oT4N7R « Kaiser Health News

7 Ways to Manage Caregiver Stress when Their Issues Are Also Your Own, http://bit.ly/2oIUdjq « Health Journeys

Spinning Out of Control: when a family member is terminally ill, http://bit.ly/2q8HyGP « SevenPondsBlog

Your feedback is welcome! Please feel free to leave a comment or a question, or share a tip, a related article or a resource of your own in the Comments section below. If you’d like Grief Healing Blog updates delivered right to your inbox, you’re cordially invited to subscribe to our weekly Grief Healing Newsletter. Sign up here.

Caregiving in Serious Illness: 8 Ways You Can Help

Source
[Reviewed and updated April 6, 2025]

Be a merciful presence to the dying and family as they are able to get their arms around deeper levels of reality. ~ Greg Yoder, in Companioning the Dying: A Soulful Guide for Counselors and Caregivers

As mentioned in an earlier post, grief occurs both in anticipation of and following a loss. Grief does not wait for a death to happen; it begins as soon as a person becomes aware that death may happen: when a life-threatening illness is diagnosed or a terminal prognosis is given. Family caregivers are in mourning too, well before the death occurs. They are coping not only with their own feelings of grief and loss, but also with physical and mental fatigue, and often feel overwhelmed with all the financial, legal, medical, and personal responsibilities associated with caregiving.

If you know someone whose loved one is terminally ill, you may be wondering what you might do to help ease their burden.

Caregiving and Hospice, November 29 - December 5, 2015

Best selections from Grief Healing's Twitter stream this week:

5 Activities to do with a Terminally Ill Loved One, http://j.mp/1XKx7Tp « Hospice of the Red River Valley

7 Must-Have Books for Caregivers Everywhere, http://j.mp/1YJtVd8 « Maria Shriver

How Caregiving Changes The Caregiver, http://j.mp/1XIbjrE « The Unprepared Caregiver

Caregiving and Hospice, December 14 - December 20, 2014

Best selections from Grief Healing's Twitter stream this week:

Outstanding interview with author Stan Goldberg on his newest book, "I Have Cancer," aimed at caregivers http://j.mp/1sL1Kcs « YouTube

Midwives for the Dying, http://j.mp/JVeGfZ « The Atlantic

Palliative Care: It’s About Easing Suffering, http://j.mp/16zsuIz « U.S.News and World Report

Caregiving and Hospice, November 9 - November 22, 2014

Best selections from Grief Healing's Twitter stream this week:

Hospice is an ally for patients with dementia and their caregivers, http://j.mp/1r6NV7C « NJ.com

A letter to Dr. Oz for his inbox, http://j.mp/1FbW02Z « Kevin, MD

Lessons from the Stage: A Lesson About Patient Communication Learned in an Improv Class, http://j.mp/1tn8wV3 « GeriPal

Anticipating the Death of A Spouse

Find the updated version of this post here:

A reader writes: My husband has advanced-stage lung cancer, and I have to face the inevitable that he will die soon. It’s been 8 months; we’ve been married for 20 years. I’m sure that it’s normal, but the thoughts that are running through my head are driving me insane. I keep envisioning myself starting relationships with other men. I feel guilty like I’ve already moved on with my life. It’s survival instinct too, because I can’t support my kids on my own and I’m trying to figure out what to do with the rest of my life. I love my husband dearly. I want to be focused on the present. How do I do that?

Caregiving and Hospice, September 7 - September 13, 2014

Best selections from Grief Healing's Twitter stream this week:

Draw the Lines: The Art of Setting Boundaries, http://j.mp/1tPLHij « Pallimed

The Story of Your Life Carries Great Power, http://j.mp/1us1eU4 « It's OK to Die

The Caregiving and Meditation Connection, http://j.mp/1uzi02I « Maria Shriver

Caregiving and Hospice, August 3 - August 9, 2014

Best selections from Grief Healing's Twitter stream this week:

The Comfort of Caregiver Support Groups, http://j.mp/1kLnBlM « The Caregiver Space

The moralities of comfort and cure at end of life, http://j.mp/V14lEK « Caring with Confidence

On being treated like a nobody in the hospital ~ and the author is a physician! http://j.mp/XEvAGJ « Musings of a Distractible Mind

Caregiving and Hospice, June 22 - June 28, 2014

Best selections from Grief Healing's Twitter stream this week:

16 questions to ask when choosing a hospice, http://j.mp/1q1CcZK
« Kevin MD

Guided Imagery and PTSD: A Different Approach to Treatment, http://j.mp/1obt3fQ « NICABM

Beautiful: Before Night Falls: Hospice nursing in pictures, http://j.mp/1vf9C6H « The New York Times