Anticipatory Grief and Mourning: Suggested Resources

So off they went together. But wherever they go, and whatever happens to them on the way, in that enchanted place in the top of the Forest, a little boy and his Bear will always be playing.  ~ A. A. Milne

A reader writes: I am the mother of a 6-year-old with Duchenne muscular dystrophy (DMD). His life expectancy is 20 years old. I am also an LPC intern currently working as a crisis counselor for disaster victims. I am interested in specializing in grief, learning more about anitcipatory grief, and assisting other families that are dealing with expected loss. I see anticipatory grief as largely overlooked in the grief and loss field. What are the best resources for those experiencing anticipatory grief?

My response: My dear, I’m so sorry to learn of your son’s serious illness, and as a mother myself, I cannot imagine how challenging this knowledge must be for you. It is extremely difficult to know that over time your loved one’s health and quality of life will deteriorate, much less having to witness it as a primary caregiver. And as you are already aware, over the next several years you will be experiencing all the emotions of grief in anticipation of losing your beloved son. You are literally living in the shadow of death, and I am in awe of your courage – not only in wanting to learn as much as you can about this process, but also in your wanting to assist other families struggling to cope with expected loss. You have my deepest admiration and respect.

You’ve asked about the best resources for those experiencing anticipatory grief, and here are some I would suggest:

Anticipatory Grief and Mourning (Article by Marty Tousley)

Anticipatory Grief and Mourning (Online Grief Discussion Forum)

Caregivers (Article by Mary Friedel-Hunt)

Companioning the Dying: A Soulful Guide for Caregivers (Book by Greg Yoder)

Dying Well, Defining Wellness through the End of Life (Website by Ira Byock, MD)

Empowering Caregivers – Choices, Healing, Love (Website for Caregivers)

Emotional Renewal for Caregivers: Looking After Yourself While Helping a Loved One (Guided Imagery CD from Health Journeys)

Facing Death and Finding Hope: A Guide To The Emotional and Spiritual Care Of The Dying (Book by Christine Longaker)

Final Gifts : Understanding the Special Awareness, Needs, and Communications of the Dying (Book by Maggie Callanan and Patricia Kelley)

Grief and Caregiving (from Hospice Foundation of America)

Handbook for Mortals: Guidance for People Facing Serious Illness (Book by Joanne Lynn and Joan Harrold)

Living with Grief When Illness is Prolonged (Book by Kenneth  Doka)

Make-A-Wish Foundation

Remember-Me (Website designed to create and send messages to loved ones after one's own death)

Respite: Therapeutic Music for Families in Need of Comfort

Saying Goodbye: A Guide to Coping with a Loved One's Terminal Illness (Book by Barbara Okun and Joseph Nowinski)

Smiling through Your Tears: Anticipating Grief (Book by Harriet Hodgson and Lois Krahn)

The Divine Art of Dying: How to Live Well While Dying (Book by Karen Speerstra and Herbert Anderson)

The Four Things That Matter Most : A Book About Living (Book by Ira Byock, MD)

Tough Transitions: Navigating Your Way through Difficult Times (Book by Elizabeth Harper Neeld, PhD)

Why Is Anticipatory Grief So Powerful? (Article by Harriet Hodgson)

Your feedback is welcome! Please feel free to leave a comment or a question, or share a tip, a related article or a resource of your own in the Comments section below.
If you’d like Grief Healing Blog updates delivered right to your inbox, you’re cordially invited to subscribe to our weekly Grief Healing NewsletterSign up here

Related Articles:

No comments:

Post a Comment

Your comments are welcome!

Related Posts Plugin for WordPress, Blogger...